You're never going to believe this!

So, I was so excited yesterday because I finally got a haircut with color. My hair looks so cute right now! That is until next Thursday, when I have to shave my head! My insurance went through for the electronic  head cap. I'm so excited, true - its experimental, but at least it gives me more hope.

Last Few Days

Just wanted to give you all an update. My doctor has decided that I needed to choose between treating my brain or treating my spinal cord. There are cancer cells in both, so it was tough deciding. I decided to keep treating my brain since I know what that involves. It's an infusion called Avastin that I get every two weeks.   

The other kind of treatment for my spinal cord involves putting an ommaya port in my brain (which I had so many complications with last year) and then the doctors don't even know if that chemo would work that well. 

The last treatment my doctor mentioned is an experimental one that hasn't been approved yet for my tumor. It is like a magnetic field that attaches to my scalp, which will have to be shaved again for this one!  My insurance company is working with the manufacturer to see if they can set me up with this. 

Anyways, those are my treatment options! Please pray that I'm choosing the right one and that it works out alright!

What Happens This Week?

Hi everybody!

So, this week I am supposed to get another Avastin on Thursday. True - I haven't heard from the hospital yet, but I am ever optimistic! :)

Now this past week, I got shingles, which is fabulous! (pun intended!) I think I can get Avastin, but I am not too sure about the interthecal chemo, which goes into my back. Everything is in the air right now!

Patient Story

I just wanted to pass on my patient story at the Seattle Cancer Care Alliance. I think it just got published today. Here is the website: http://www.seattlecca.org/patient-story/tiffany-kennard-survivor.cfm
Thanks for checking it out!

I'll keep you updated on my MRI tomorrow. I should know something by tomorrow afternoon. Keep those prayers coming!

Another Couple of Those Days

Well, I should have known better than to expect chemo three weeks in a row! All of my blood levels were too low last Thursday and so chemo was withheld for another week.

Then, on Friday, I had to go to the ER for another seizure. I had some difficulty with answering questions this time and it lasted longer than normal. They did a CT scan and spoke to the neurologist at the UW Medical Center and decided that I could go home since the seizure had abated.

Other than being incredibly tired, the rest of the weekend went well.

I have an MRI and more labs scheduled next week to see what is going on and whether chemo can be restarted, so I would really appreciate prayers!

Another Good Thursday!

I had another good chemo yesterday. I did have some minor side effects, but it's going away now. I actually had an interview yesterday for the Seattle Cancer Care Alliance. It went pretty well. I'll send you the link when it's finished.

I know it sounds contrite, but thank you all so much for your prayers for me and my family! We really appreciate it!

Happy Day!

Sure-that title could mean a lot of happy things, but to me it meant finally getting on my chemo! I had a couple of weeks of delay since my platelets were low, but they are back and I was ready to roll! Thankfully I have a great nurse who pre-drugged me before and gave me good directions to stay ahead of my nausea
(which meant another lorazepam for the ride home!). I've been able to handle this new chemo quite well, other than yesterday where I was a bit sick in the morning. Now I have the same appointment next week- Same Bat Time, Same Bat Channel!

And now I'm just watching "Bomba The Jungle Boy" movie with my mom. Can this day get much better?? :)