Another Couple of Those Days

Well, I should have known better than to expect chemo three weeks in a row! All of my blood levels were too low last Thursday and so chemo was withheld for another week.

Then, on Friday, I had to go to the ER for another seizure. I had some difficulty with answering questions this time and it lasted longer than normal. They did a CT scan and spoke to the neurologist at the UW Medical Center and decided that I could go home since the seizure had abated.

Other than being incredibly tired, the rest of the weekend went well.

I have an MRI and more labs scheduled next week to see what is going on and whether chemo can be restarted, so I would really appreciate prayers!

Another Good Thursday!

I had another good chemo yesterday. I did have some minor side effects, but it's going away now. I actually had an interview yesterday for the Seattle Cancer Care Alliance. It went pretty well. I'll send you the link when it's finished.

I know it sounds contrite, but thank you all so much for your prayers for me and my family! We really appreciate it!

Happy Day!

Sure-that title could mean a lot of happy things, but to me it meant finally getting on my chemo! I had a couple of weeks of delay since my platelets were low, but they are back and I was ready to roll! Thankfully I have a great nurse who pre-drugged me before and gave me good directions to stay ahead of my nausea
(which meant another lorazepam for the ride home!). I've been able to handle this new chemo quite well, other than yesterday where I was a bit sick in the morning. Now I have the same appointment next week- Same Bat Time, Same Bat Channel!

And now I'm just watching "Bomba The Jungle Boy" movie with my mom. Can this day get much better?? :)

Same as Last Week

Unfortunately, my platelets levels are not high enough to do the chemo this week either. I am a little bit bummed out! Hopefully, they'll be at the right level next week! If not, someone is going down! :)

Please continue to pray that these numbers will rise! Thank you.

Change of Plans...Again!

So I found out this morning that my platelet levels are too low to do the chemo today. I will get my blood tested again on Monday and hopefully start next week. I am a little disappointed to not be starting now, but at least I can enjoy a sixty degree day!

I had my lumbar puncture yesterday. It went fine, as long as lumbar punctures go! I got one of the residents that has definitely improved since I first had him. And the technician knew I was a little tense and started giving me margarita recipes to try out when I can drink again. True-it doesn't make me forget that there is a needle in my spinal cord, but I appreciate her effort all the same! :)

My family has a sick sense of humor and finds the funny in weird situations.  So, of all things, the Obama campaign called for me yesterday to ask me to join their campaign. My mom answered and said that since I'll be starting chemo, I'll probably not be the best campaigner for them. The lady on the phone totally flipped out, asked how I was doing, and ended with offering positive thoughts and prayers for me. Not sure the lady wasn't even crying!

This Week

This is going to be a crazy week! I have a lumbar puncture tomorrow, which I'm not looking forward to. Thank God for lidocaine (I sincerely mean that!)! I also have to get my lungs checked out tomorrow before I start the chemo. Kinda scary that they are checking my lungs this time! It makes me start to wonder about what is in the chemo!

So I go back up on Thursday for the chemo. I don't really know much more than that now. I just ask for prayer that I would handle the chemo well and that it would work! I'd really like a "time-out" from treatment, its only been about 11 years! :)

Well, crap!

I had another MRI yesterday and apparently I have two lesions that they have been watching that are "glowing" more on the MRI scan. Apparently, that means those lesions are changing, which we're not sure what that means. And there are still atypical cells in my spinal cord fluid, so I have to get more lumbar punctures to monitor that.

My chemo has been changed again. I'm stopping the one I've done for three cycles and starting a new one, which is an infusion at the hospital.  I'm still digesting all of this and hopefully this post makes sense. At least the new chemo doesn't have food restrictions!

I feel a little bottomed out right now. I had really been hoping for a little "time out" from treatment. Please pray for wisdom in the doctor's decision and that these lesions would go away!! I even told the doctor that I gave up chemo for Lent, but he didn't buy it!